I'm in my early twenties and live in the UK. I've been living with an undiagnosed chronic illness for the last year (possibly mildly for longer), have been out of work for 9 months, and a near full time electric wheelchair user for the last 3 months. I am currently homeless (but not roofless) having needed to move out of my old place due to harassing house-mates and because it was inaccessible.
My experience may be slightly different to others in that I already defined as myself as 'disabled' before becoming ill. This was due to a mixture of neurodiversity and mental health issues. Sometimes these pre-existing disabilities do interact with my illness[es] so it's hard to know what's causing what.
There are both good and bad aspects to my other conditions but this illness in and of itself can only be negative and with that has come a lot of grief; grief that I do not currently feel able to deal with when I do not know if this is permanent, treatable, curable or progressive.
The name 'cobble-gasm' was born whilst I was wheeling along some very old cobbles and found that my wheelchair vibrated violently. Since then, 'cobble-gasm' has been my curse of choice when encountering dodgy pavement.
This blog is to include information on my medical journey to getting a diagnosis as well as serving as a place to rant about the medical system, social housing, buses (etc etc) and to give funny anecdotes of life as a visibly disabled person.
I ask that if you know who I am in real life that, you still keep my identity private due to the personal nature of this blog.
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